interesting post from DNAeXplained - Genetic Genealogy
By rmcneal103 |
I just read an interesting post entitled, "Beware The Sale of Your DNA – Just Because You Can Upload Doesn’t Mean You Should," and thought I would share the link with the group.
This is reminiscent of Rebecca Skloot's book, "The Immortal Life of Henrietta Lacks." Henrietta was a cancer patient many years ago from whom doctors took cells without her knowledge or permission. They developed cell lines from her that are still today used in research, with financial gain for various individuals and organizations, and with nothing for her or her family. This was done before informed consent was required for participation in medical research.
I wonder if the practice of these DNA testing companies is consistent with modern medical informed consent practice?
This book is still available and is worth reading.
Informed consent
This is reminiscent of Rebecca Skloot's book, "The Immortal Life of Henrietta Lacks." Henrietta was a cancer patient many years ago from whom doctors took cells without her knowledge or permission. They developed cell lines from her that are still today used in research, with financial gain for various individuals and organizations, and with nothing for her or her family. This was done before informed consent was required for participation in medical research.
I wonder if the practice of these DNA testing companies is consistent with modern medical informed consent practice?
This book is still available and is worth reading.
George Fulton